Cord Blood Donation Kit

When you donate your baby’s cord blood you will need to do it at a cord blood collection hospital or obtain a cord blood donation kit. The cord blood donation kit comes with everything the doctor or midwife needs to collect your baby’s cord blood for a public donation.  You may also be interested in storing your baby’s cord blood in a private cord blood bank.

If you would like to donate your baby’s cord blood and aren’t going to deliver in a hospital that does cord blood collection, you can order one of these kits. The cord blood collection kits must be ordered six weeks in advance of your due date. You should discuss this with your physician or midwife. The physician or midwife will have to take a certification class prior to collecting the cord blood.

When using the kit, the blood has to be collected and shipped back to one of three collection sites within 40 hours of delivery. The red box that comes with the kit is temperature controlled, so the blood will be safe as it travels to the collection site.

Anyone who wants to participate must be 18 years or older and will have to pass a health screening. The cord blood donation kit and the actual donation don’t cost the mother anything; it is free.
Donations will be listed on the National Marrow Donor Program website, BeTheMatch.org, and will be used to help patients that can benefit from it.
If your are interested in participating or would like more information about the cord blood donation kit, you can contact NMDP at 1-800-MARROW-2.

Stem Cell Clinical Trials

Study to Assess the Safety and Effects of Autologous Adipose-Derived Stromal in Patients With Parkinson’s Disease – Adipose means to be taken from fat. This study will take fat from the abdomin of the patient and extract stem cells from it.

How Much Does Cord Blood Banking Cost

Cord blood banking cost range from relatively inexpensive to a modest price range. There are five cost usually involved when purchasing cord blood banking. There is an initial, first year fee. Then there is a yearly storage fee. Next, at some cord blood banks, there is a courier fee to move the cord blood from the hospital to the lab. You will also incur a fee from your doctor to collect the cord blood. Finally, the hospital may charge an additional fee for use of its facility and staff in collecting the cord blood.

The cost of cord blood banking starts around $900 dollars and goes up around $2300 for the first year’s fee. This cost should include the FDA approved sterile collection kit and the service of processing and storing the blood for the first year.

The next cost is a yearly fee charge by the cord blood bank to store the cord blood. This fee ranges from free to about $130. Usually you will pay a higher first year fee to get a lower yearly fee, but this is not always the case and you will want to look into this to be sure.

Some cord blood banks add an addtional cost by charging a courier fee to move the cord blood from the hospital to the lab. Not all cord blood banks charge this fee. The cost runs around $150. It is a one time cost to you.

Another cost you are likely to see is the fee your doctor will charge to process the cord blood. Usually the cord and placenta are sent to the lab to evaluate that they have been discharged completely. Because your doctor will have to be involved prior to the delivery to coordinate the cord blood procedure and will have to do extra work in processing the cord blood, the doctor may charge an addition fee which will probably cost you. Speak to your doctor early if you are considering banking your baby’s cord blood, even if you have not made up your mind. He will be able to give you some guidance on the subject. He will also be able to tell you if he has done the procedure before and if there are any addition cost from his office.

The final cost that you will want to access is the hospital’s fee for the use of their facility to process the cord blood. Extra steps will have to be taken by the hospital staff to assist the doctor in extracting the cord blood. This will cause the hospital to incur additional cost and they will more than likely pass it on to you. Check with your local hospitals to see how much the cost ranges.

For all of the lab fees, many of the labs offer financing. The terms range from 6 months to 48 months. Some have no interest at all, others have up to 12 months interest free, and some just have regular interest financing.

In a final note, if you decide to donate your cord blood to a public cord blood bank, there is usually no monetary cost to you.  You may want to check out our cord blood banking pros and cons page to help you decide what is the best route for you to take.  We also have a good post on cord blood uses and applications.

Cord Blood Banking Pros and Cons

Cord blood banking has its pros and cons.  You will want to weigh both before making your decision on using a cord blood bank.  The pros and cons usually center around saving cord blood for your own children, donating it to a public cord bank, the cost of storing cord blood in a cord blood bank, and the preparation it takes to have the execute the procedure.

Many doctor’s believe that saving cord blood to help future patients is good.  But most of them do not feel you should save the cord blood for your own children.  They say that it is unlikely that you will use the blood to help the child it came from, although it is more probable that it could help a sibling.  They also note, that cord blood is not usually used to treat genetic disorders for the person it came from because the stem cells may contain the disorder.

To many, including some doctors, saving your baby’s cord blood in a private bank is not good for society and is, therefore, a con.  They say that society would benefit more by having the cord blood donated to a public bank.  The other end of the argument, and a pro for many parents, is the fact that they will have some of their own child’s cord blood stored in a bank that they trust and can access whenever a need may rise.  They don’t feel that it is their duty to give there child’s cord blood to the public and will not be shamed into doing so.  With the future never clear as to someone’s medical health, parents that save their child’s cord blood in a private cord blood bank, feel better knowing that their child will have access to it for the rest of their lives and will not have to go to the public bank.  This gives them peace of mind that it will be blood that they know and will not be rejected by the child’s body because the stems cells will have come from the child’s cord blood.  Those that disagree with storing cord blood in private banks say that the public bank can provide each individual what they need in a safe and cost effective way.

Cost to store

The cost to store cord blood can be a negative or con for many.  The price to store cord blood ranges from around a thousand dollars to several thousands of dollars.  There is usually a yearly fee involved to maintain the cord blood in the bank.  Cord blood storage has not been around for a long time and it is not known exactly how long it can be stored for.  So far samples of up to twelve years have been tested and shown to have no deterioration.  There are some claims that samples of cord blood have been used from longer, like over 100 years, but this has not been substantiated.

Preparation and effort to do procedure

Another part of cord blood banking that can be considered a con and not a pro, is the amount of effort it takes to prepare and carry out the process of collecting the cord blood.  A mother needs to know in advance if she is going to collect the cord blood and send it to a bank.  This requires the parents to make their decision well in advance of the baby’s birth.  Once the decision is made to use a cord blood bank.  The parents have to send for a kit that they will supply to the hospital at the birth. The doctor and hospital staff have to make preparation to collect the cord blood and send it to the cord blood bank.  There could also be an additional fee for the doctor and hospital carrying out the procedure.  This could possible limit the hospital and doctor that the mother uses for delivery.  Some doctors and hospitals may not offer the service of collecting the cord blood.  This could be an additional con for the parents.
medical history and safety

In collecting the cord blood, the bank needs to keep detailed records of the families medical history.  This information can be used when deciding to harvest stem cells from the cord blood.  This can be a pro and con for using either public or private banks.  It is a pro because it can be known where the cord blood came from and what types of medical issues the donor family had in the past.  It can be a con because there is more personal information collect about people that they may not want others to know.

Cord Blood Uses and Applications

Cord blood can be used in many of the same applications as bone marrow; which include cancer and genetic disease of the blood.  The use of cord blood is growing and much promising research is being done to expand its applications.

The following is a list of diseases that have been treated with cord blood according to the National Cord Blood Program.

DIAGNOSIS for Transplantation with NYBC CB units

Leukemias
Acute Lymphoblastic Leukemia
Acute Myelogenous Leukemia
Acute Biphenotypic Leukemia
Chronic Lymphocytic Leukemia
Chronic Myelogenous Leukemia
Chronic Myelomonocytic Leukemia
Juvenile Chronic Myelogenous Leukemia
Juvenile Mono-myelocytic Leukemia
Leukemia, Unspecified

Lymphomas
Non-Hodgkin’s Lymphoma
Hodgkin’s Disease
Epstein-Barr Virus / Lymphoproliferative Disease
Autoimmune Lymphoproliferative disease
Lymphoma, unspecified

Myelodysplasias
Myelodysplastic Syndrome
Myelofibrosis

Bone Marrow Failure Syndromes
Amegakaryocytic Thrombocytopenia
Diamond-Blackfan Anemia
Dyskeratosis Congenita
Fanconi’s Anemia
Parxysmal Nocturnal Hemoglobinuria
Reticular Dysgenesis
Severe Aplastic Anemia, Unspecified
Shwachman-Diamond Syndrome
Sideroblastic Anemia

Hemoglobinopathies
Sickle Cell Disease
Thalassemia

Immune Deficiencies
Common Variable Immune Deficiency
Congenital Immune Deficiency
DiGeorge syndrome
Griscelli Syndrome
Lymphocyte Adhesion Disease
Nezelof Syndrome
Omenn Syndrome
Severe Combined Immune Deficiency (SCID)
Wiskott-Aldrich Syndrome
X-linked Hyper-IgM Syndrome
X-linked Immune Dysregulation Polyendocrine Enteropathy

Histiocytosis
Familial Erythrophagocytic Lymphohistiocytosis
Hemophagocytic Lymphohistiocytosis
Hemophagocytic Syndrome
Histiocytosis
Langerhans Cell Histiocytosis (Histiocytosis-X)
X-Linked Lymphoproliferative Disease

Metabolic/Storage Diseases
MPS, not specified
Hurler Disease (MPS type IH)
Hurler-Scheie Disease (MPS type IS)
Hunter’s Syndrome (MPS type II)
Sanfilippo Disease (MPS type III)
Morquio Syndrome (MPS type IV)
Maroteaux-Lamy Syndrome (MPS type VI)
Adrenoleukodystrophy
Alpha-mannosidosis
Amyloidosis
Aspartylglucosaminuria
Austin’s Disease (Multiple Sulfatase Deficiency)
Fucosidosis
Gangliosidosis
Gaucher’s Disease
I-cell Disease (Inclusion Cell Disease)
Infantile Ceroid Lipofucoscinosis
Krabbe Disease
Lesch-Nyhan Syndrome
Metachromatic Leukodystrophy
Neiman-Pick Disease
Osteopetrosis
Sandhoff Disease
Sialidosis
Tay Sach Disease
Wolman Disease

Neutrophil Disorders
Chediak-Higashi Syndrome
Chronic Granulomatous Disease (CGD)
Congenital Neutropenia
Kostmann Syndrome

Platelet Disorders
Congenital Thrombocytopenia
Glanzmann’s Thrombasthenia

Other Malignancies
Breast Cancer
Multiple Myeloma (Plasma Cell Disorder)
Neuroblastoma
Other Malignancy
Autoimmune diseases
Systemic Lupus (SLE)

Porphyria
Congenital Erythropoietic Porphyria

Other
Epidermolysis Bullosa

What is Cord Blood?

Cord blood is the blood left in the umbilical cord and placenta after a baby’s birth.  Cord blood has the same properties as regular blood, white blood cells, red blood cells, platelets, and plasma.  It also is rich in stem cells that can be used to treat hematopoietic and genetic disorders.
The cord blood is extracted from the cord after it is cut from the baby.  Only a small amount of stem cells are contained in the cord itself as compared to the amount in the placenta; though the stem cells that are collected from the cord are very valuable.  The amount collected from the cord is usually not enough to treat an adult patient.
The placenta, containing the riches source of stem cells, is also harvested.  After the placenta is inspected to make sure all of it has come out of the uterus, the blood is extracted.
After the cord blood is collected, it is sent to a cord blood bank.  There are both public and private cord blood banks.  Public cord blood banks store cord blood for public use.  Private cord blood banks store cord blood for individual family use.  Public cord blood banking is free.  Private cord blood banking cost the family an initial fee for processing ans storage and a yearly storage fee.  The FDA regulates both private and public cord blood banks under Title 21 Section 1271 of the Code of Federal regulations.
There are also two voluntary accreditation boards that banks can register with; Foundation for the Accreditation of Cellular Therapy, also known as Fact, and the American Association of Blood Banks, also known as AABB.  Each organization has a searchable database, accessible through there websites.
There is some controversy surrounding the collection of cord blood and storing of cord blood.  The controversy is around the use of private vs public cord blood banks.  It is not about whether we should or shouldn’t store cord blood for future use.  You can learn more on our post, the pros and cons of cord blood banking.

Private Cord Blood Banking

If you are thinking about saving your baby’s cord blood, you have two choices;  private cord blood banking and public cord blood banking.  This post is about private cord blood banking.  Private cord blood banking gives you the opportunity to store your child’s umbilical cord blood for later use should it become necessary.

All of the private cord blood banks are regulated by the FDA; certain standards must be met.  Private cord banks can be a little expensive in some people’s opinion.  The cost to store cord blood, if you have the money, is minimal compared to the benefit your child will get if the cord blood is ever needed.

Some people, including some doctors, feel that storing your child’s cord blood in a private bank has little benefit for anyone.  They say that statistically, only a small percentage of children ever use their own cord blood.  They feel that banking the blood in a public cord blood bank would better serve the population as a whole.  It is a good thing that some people donate their cord blood to public banks, but you should not feel bad if you want to save your child’s cord blood in a private cord blood bank.  The statistics they are basis their conclusions have a short range, being only a few decades.  And, the statistics also say that many diseases are rare; meaning most of us won’t get the types of disease that are treated by cord blood.  Read our post on cord blood banking pros and cons to help you weigh the benefits and drawbacks to using a private cord blood bank vs. a public cord blood bank.

The diseases treatable by cord blood is growing and having your own store in a private cord blood bank could greatly benefit your child that it comes from or a sibling.  If you are considering banking your child’s cord blood in a private cord blood bank, then you should read through our site.  We have researched the topic fairly well and have provided information to aid you in your decision.